Your Weekly Dose of Information – April 2, 2016

RI Alliance for Vaccine Choice has been referred to as an “Advocacy Organization” What does it mean?  – Deb O’Leary

An advocate is someone who provides advocacy support when you need it. An advocate might help you access information you need or go with you to meetings or interviews, in a supportive role. As RI Alliance for Vaccine Choice, we do act as leaders in a supportive role to encourage others to achieve.

Self Advocacy:

  • Have their voice heard on issues that are important to them.
  • Defend and safeguard their rights.
  • Have their views and wishes genuinely considered when decisions are being made about their lives.

Our Advocacy is a process of supporting and enabling people to:

  • Express their views and concerns.
  • Access information and services.
  • Defend and promote their rights and responsibilities.
  • Explore choices and options

Legislative Update

This past Thursday, March 31st the group presented testimony for Senate Bill S2292 and Senate Bill S2295.  All the bills presented that evening were held for further study. We will keep you updated on the progress of these bills.

Committee Hearings Update

We checked the Committee Hearing Schedules and the remaining  House Bill H7899 will be heard Wednesday April 6, 2016 by the 17 members of the House Committee On Health, Education & Welfare.

In the News

Thank you Jennifer Bogden and The Providence Journal  for your coverage of the Senate Bill hearings this past Thursday. To read the article Click Here.

© RI Alliance for Vaccine Choice and Vaccine Choice RI™, 2015. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to RI Alliance for Vaccine Choice and Vaccine Choice RI™ with appropriate and specific direction to the original content.

Your Weekly Dose of Information – March 25, 2016

Vaxxed: From Cover-Up to Catastrophe

Over the last few days there has been a lot of discussion and backlash around this documentary and its screening at the Tribeca Film Festival this April. It amazes me how people that question authority or believe differently than the majority are judged and considered “Crackpots” Why are people afraid to hear all sides? Why are people fighting so hard to discredit Andrew Wakefield?  Deb and I were talking this morning and she mentioned that she had met Andrew Wakefield…Deb your knowledge never ceases to amaze me! Check out Deb’s excerpt below about Andrew Wakefield.

Statement from Robert De Niro, co-founder of the Tribeca Film Festival, regarding VAXXED at the Festival:

“Grace and I have a child with autism and we believe it is critical that all of the issues surrounding the causes of autism be openly discussed and examined. In the 15 years since the Tribeca Film Festival was founded, I have never asked for a film to be screened or gotten involved in the programming. However this is very personal to me and my family and I want there to be a discussion, which is why we will be screening VAXXED. I am not personally endorsing the film, nor am I anti-vaccination; I am only providing the opportunity for a conversation around the issue.”

You can Watch the Vaxxed Trailer Here. The screening is in NYC Sunday April 24th at 2pm and tickets go on sale Tuesday, March 29th. I hope to take the train in for the day leaving from Providence if anyone is interested in joining me.

Do your research, ask the hard questions, and trust your “gut feelings”
-Shawna

Who is Andrew Wakefield?

Dr. Andrew Wakefield is a pediatric gastroenterologist. He published, with others, a 1998 paper in the British Medical Journal, The Lancet, about his observation of severe gastrointestinal problems in children with autism and the possible Gut-Brain Connection to the MMR vaccine.

My last opportunity to meet Dr. Wakefield in person was at an Autism One Conference in Chicago a few years ago. He greets you warmly, like old friend. He has a slightly rumpled, college professor appearance with a distinct British accent. When he gave his speech, his voice was strong and clear. Myself, as well as others in attendance were not hearing his words as new information. We needed no convincing. He described our life with our vaccine injured kids. Andy Wakefield could have run away from the constant scrutiny and controversy. Instead he has chosen to stay and fight with us. As Dr. Wakefield said in the prologue of his book, Callous Disregard published in 2010: “If autism does not affect your family now, it will.”

It is my hope that this good man finally receives the respect he so richly deserves.
-Deb

Committee Hearings Update

We checked the Committee Hearing Schedules this week and 2 of the 5 bills are scheduled for next week. Senate Bill S2292 and Senate Bill S2295 are scheduled for Thursday March 31st and will be heard by the 9 members of the Senate Committee On Health & Human Services  We need your support! 

We will update you when House Bill H7899  is scheduled.

In the News

We would like to that the Warwick Beacon and Kelcy Dolan for their continued support. Their article “Bills would limit state ability to mandate vaccines” was published this past Tuesday.

© RI Alliance for Vaccine Choice and Vaccine Choice RI™, 2015. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to RI Alliance for Vaccine Choice and Vaccine Choice RI™ with appropriate and specific direction to the original content.

Your Weekly Dose of Information – March 18, 2016

Legislative Update

This past Wednesday, March 16th, the group presented testimony for House Bill H7475 and House Bill H7476. To view the testimony click here. All the bills presented that evening, including ours, were held for further study. We will keep you updated on the progress of these bills.

Some highlights from our testimony relating to H7475

“A post on our Facebook page told of a recent incident at a local high school. The names of 50 students needing vaccinations recommended by the Vaccinate before you Graduate Program had their names announced over the school public address system indicating they would not graduate without the recommended vaccines. This is a clear violation of HIPAA or perhaps FERPA and in my opinion, medical bullying.”  Deb O’Leary

“No family should be bullied into choosing a treatment or risk losing their doctor. No child should be excluded from school because they haven’t been given a vaccine for a disease that is non-transmissible in schools. I am asking you to support this bill because it will strengthen informed consent and a patient’s right to choose treatment. I believe this bill will also help change the conversation between families and doctors, and will ensure that children are not excluded from school simply because they have not been vaccinated against sexually transmitted diseases like HPV. Please support House Bill 7475.” Kristen P.

Some highlights from our testimony relating to H7476

“When the RIDOH added Gardasil and Menactra to the schedule in December of 2014, the informational hearings were held after the decision was made. Parents were upset and angry and rightly so. Pediatricians were informed during the decision making process as “interested parties”. Parents who are the most important “interested party” when it comes to the health of their children were not invited or informed.” Deb O’Leary 

“As a parent, I feel the government is dictating what medical treatments my children must have, without my input or consent. This bill will help ensure that Rhode Island citizens are not only informed, but consulted when these type of decisions arise. I believe it is essential for the public to have greater opportunities to be informed and to provide input into decisions made by the Department of Health about rules they are planning to adopt concerning mandated medical treatments including immunizations. Please support House Bill 7476.” Kristen P.

Committee Hearings Update

We checked the Committee Hearing Schedules this afternoon and the remaining 3 of the 5 bills are not scheduled for next week.  Is your senator or representative on either committee? Please check the committee links below and take the time to contact them. 

House Bill H7899 will be heard by the 17 members of the House Committee On Health, Education & Welfare.

Senate Bill S2292 and Senate Bill S2295 will be heard by the 9 members of the Senate Committee On Health & Human Services

We will update you when these meetings are scheduled!

In the News

We had the opportunity to speak with Ken from Educate Yourself this past Tuesday March 15th regarding the upcoming House and Senate Hearings. Click here to listen to the podcast.

© RI Alliance for Vaccine Choice and Vaccine Choice RI™, 2015. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to RI Alliance for Vaccine Choice and Vaccine Choice RI™ with appropriate and specific direction to the original content.