My Turn: Maddalena Cirignotta: Why does R.I. Department of Health want to track us?

Thank you to the author for permission to share her op-ed from Providence Journal.

This winter, the Rhode Island Department of Health has introduced legislation via Rhode Island lawmakers to track the complete medical records of every person in our state. This RIDOH Registry would extend our current mandatory tracking system from all minors to all adults as well. House Bill 7882 and Senate Bill 2530 would let the RIDOH legally data mine the personal medical information of every adult and child in Rhode Island.

If H-7882 and S-2530 are passed, the Department of Health will track all sensitive and private medical information for all people in our state. RIDOH will have unrestricted knowledge of medications we are taking, medical procedures we have had, pregnancies, counseling services, mental health, and all medical choices we have made.

There is no opt-out of the registry. If passed, it will be mandatory. According the language of the bills, “Any person may opt out of the disclosure of their immunization status by contacting the department of health.” What about the rest of the registry? This bill violates the right to informed consent as well as privacy. We as human beings, have the right to say “no” to imposed data collection of our personal records.

KIDSNET, our current no-opt-out, mandatory tracking system for all minors in Rhode Island, even collects our children’s Social Security numbers. RIDOH does not list the “participating programs” that have access to the Social Security numbers and private medical records of our children. Furthermore, “parental consent to include children’s data is not required.”

Any tracking system should always respect the human right to informed consent. KIDSNET should be an opt-in-only system that requires a signature in order for data to be collected in the first place. Meanwhile, these draconian adult registry bills should be permanently put to rest.

These alarmingly invasive bills violate our core right to privacy. They additionally raise several deeply concerning questions about the RIDOH:

Why does our state health department want to track our personal data? How does the RIDOH justify legislation that removes the basic tenant of informed consent? Once our data is collected, what recourse would citizens have to protect our information from hackers? How would people ensure that their private medical choices will not be used against them in the future? Does the RIDOH expect taxpayers to fund this massive and costly registry?

In 2017, voices of all kinds began to speak out with their truths. Individuals are joining the collective chorus of outrage as we declare, “Enough is enough.” The time is ripe for Rhode Islanders of all races, genders, cultures, abilities and backgrounds to claim our inherent rights to privacy, choice and informed consent for ourselves and our children.

If we wish to maintain our core freedoms, we must all tell our lawmakers that we do not want to be forced into a mandatory tracking system by our government. House Bill 7882 will be heard by the Health, Education and Welfare Committee in Room 101 of the Rhode Island State House within the next few weeks. Let our representatives know that Rhode Islanders do not wish to be forcefully tracked by the Rhode Island Department of Health or any other government agency.

Maddalena Cirignotta, of Wakefield, writes for the Rhode Island Wellness Society.

Advertisements

Time to Focus on Legislation

Time to Focus on Legislation

This is the third legislative session since Gardasil 9 vaccine was added for 7th graders in Rhode Island. In that time our group and others have made efforts to inform and educate parents about their rights to exemption and informed consent. You have shared your stories about trying to find a pediatrician who gives informed consent, your struggles with vaccine injured children, and your stories of extremely healthy vaccine free children. The legislation this year is reflective of all those stories. We have joined with others under Health Choice Northeast to coordinate our efforts both locally and nationally.  We have new friends and fellow advocates from all the New England States and New York.

This Rhode Island legislative session looks promising. There are three excellent bills on the House Side and at least two on the Senate side. We owe our gratitude to a hardworking group of State Representatives: Sherry Roberts, Justin Price, Robert Lancia, Robert Quattrocchi, Michael Chippendale, Jeremiah O’Grady, Daniel McKiernan, and Blake Filippi.

House Bill 7576 Allows for parents and others to opt out of vaccines for non-casual contact diseases transmitted by sexual contact between individuals and would require all correspondence to parents relating to vaccinations to contain notification about the option to opt out. http://webserver.rilin.state.ri.us/BillText18/HouseText18/H7576.pdf

House Bill 7686 This Act would provide an exemption to required school immunizations for personal or philosophical beliefs. http://webserver.rilin.state.ri.us/BillText18/HouseText18/H7686.pdf

House Bill 7704 This Act would require Informed Consent for vaccinations. http://webserver.rilin.state.ri.us/BillText18/HouseText18/H7704.pdf

All three of these bills have been referred to the House Health Education and Welfare Committee. If your representative is a member, please contact them and ask for their support. http://webserver.rilin.state.ri.us/ComMembers/ComMemr.asp?ComChoiceR=HHEW

Contact info: http://webserver.rilin.state.ri.us/Email/RepEmailListDistrict.asp

On the Senate side, we have some amazing Senators who we thank for being supporters of Vaccine safety and Informed Consent: Senators Harold Metts, Elaine Morgan, Thomas Paolino, and Stephen Archambault . Please thank all these Senators for their efforts and call your Senator and encourage them to support and cosponsor this legislation.

Senate Bill 2405 Is a companion bill to H7576 and sponsored by Senator Metts. It has been assigned to the Senate HHS committee http://webserver.rilin.state.ri.us/BillText18/SenateText18/S2405.pdf

Please contact the committee members and encourage them to support this bill. http://webserver.rilin.state.ri.us/ComMembers/ComMemS.asp?ComChoiceS=SCHH

http://webserver.rilin.state.ri.us/Email/SenEmailListDistrict.asp

Action Summary:

Call your Senator and HHS committee members and ask them to support S2405 and recommend for passage. Ask them to also co-sponsor the reinstatement of the philosophical exemption bill.
Call your Representative and the members of the House HEW committee. Ask that they support H7576, H7696 and H7704 and recommend them for passage.
Sign up in the contact us section to be informed of committee hearings and related events.
Please share this post with friends and family.

For your rights, your health, your choice,

 

Deb

 

Looking forward to 2018.

Happy Holidays!

I know you are all busy with Holiday preparations.  It is that time of year when we enjoy time with family and friends.  While you spend time sharing food, drink and holiday cheer with others, take the opportunity to share this information about vaccine safety.

In this video taped early this year, vaccine safety advocate, producer and medical journalist, Del Bigtree, presents a Vaccine Safety Project power point developed by the World Mercury Project.  This information will inform and empower.  Less than an hour of your time.

Del Bigtree-vaccine safety

In the new year,  let’s all continue the work to inform and protect the rights of all to vaccine choice and health freedom.

Wishing you good health and good cheer in the New Year,

Deb O’Leary

Rererences:

http://www.worldmercuryproject.org

Icandecide.com

 

Eighth Annual Vaccine Awareness Week

  • November 5-11th, is Vaccine Awareness Week.  The National Vaccine Information Center in association with Mercola.com will be hosting a series of online videos on Vaccine safety and Informed Consent.  Go to www.nvic.org for more information.
  • #RIAVC has received several inquiries regarding vaccine choice friendly pediatricians in Rhode Island. It appears they are difficult to find.  If your doctor is “friendly” and taking new patients, please contact us.
  • Don’t forget to set your clocks back 1 hour tonight!

 

 

 

Holding HHS Accountable: a complex legal issue.

In 1986, the United State Congress passed a bill called The 1986 Childhood Vaccine Injury Act.

This bill was written and supported by the pharmaceutical companies who manufactured vaccines.   In the early 1980’s there were increasing  numbers of liability lawsuits filed by parents of children who were injured or killed by the DTP vaccine. Some of the settlements were sizable.   These vaccine makers threatened to stop producing vaccines altogether unless something was done.  

What Congress did was make it nearly impossible to sue a vaccine maker or a doctor administering a vaccine.   Instead, they created a “vaccine court” within the US Court of Claims and began adding a fee to every vaccine dose sold in the USA to fund it.  Since 1987, the vaccine court has paid out over 3.7 Billion dollars.   

The CDC recommended vaccine schedule has grown unchecked from 24 doses of 3 vaccines to 72 doses of 13 vaccines and more are being considered for approval. Most are required for school attendance and child care.   Forty eight states, including Rhode Island,  allow religious or philosophical exemptions to vaccination.  California, Mississippi and West Virginia have only a medical exemption.  A manufacturer can be sued if your child’s crib falls apart, but if your baby dies or becomes seriously injured by a vaccine, the manufacturers and medical personnel who administer the vaccine,  have no liability.  

2017 is the year this could all change.  Below are links to a letter and a supporting white paper sent to the Acting Secretary of HHS by the Informed Consent Action Network which questions HHS compliance with the provisions regarding vaccine safety and if they have been followed. Please read by clicking on here HHS Letter and Documents

The HHS Secretary has 60 days to reply to ICAN’s request.  

 

 

Informed Consent: knowing all the risks, benefits and alternatives to any medical treatment.  

YOUR RIGHT, YOUR CHOICE, YOUR HEALTH

Your Weekly Dose Of Information – May 20, 2016

Checking In

It’s been a few weeks since we’ve sent The Weekly Dose Of Information. The group has been busy working behind the scenes and wanted to share with you what we have been up to!

Vaxxed: From Cover-Up to Catastrophe

We wrote about this in our March 25th Weekly Dose Of Information and as part of our efforts to bring Vaxxed: From Cover-Up to Catastrophe to RI we created the Facebook community page “Bring Vaxxed to Rhode Island”. The more interest we have from the community the better chance we have of bringing the screening to RI. Please like and share the page.

1st Annual Global HPV Vaccine Advocacy Symposium at The Autism One Conference

We are so excited and a little jealous that our Chairwoman Deb O’Leary is heading to the Autism One Conference next week.  Don’t forget to follow us on Twitter @VaccineChoiceRI for up to date tweets from Deb!

This year, the Autism One Conference will feature the First Annual Global HPV Vaccine Advocacy Symposium on May 27, 2016 in Chicago. There will be an international panel of experts, including Dr. Sin Hang Lee, speaking on Scientific, Recovery and Advocacy in regards to the HPV vaccine. There will also be seminar on the use of Cannabis to help children with seizures, chronic pain and Autism. This will be presented by Dr. Judy Mikovics. Google her. She has an amazing story.

Legislative Update

We wish we had some exciting news to report here…At this time all bills are held for further study. If you haven’t reached out to the committee members and your legislators there is still time.

The following bills were introduced this legislative session

Senate Bill S2292
Senate Bill S2295
House Bill H7475
House Bill H7476
House Bill H7899

House Bill H7475House Bill H7476 andHouse Bill H7899 were heard by the 17 members of the House Committee On Health, Education & Welfare.

Senate Bill S2292 and Senate Bill S2295 were heard by the 9 members of the Senate Committee On Health & Human Services

Contact your legislators and the committee members

Remember you elected them, hold them accountable. Our HPV Parent Information Kit has a lot of information and a sample letter you can email to your legislator.

In the News

On May 9, 2016 Missy Fluegge from VacTruth published “How Rhode Island Parents Are Winning Back Their Rights to Vaccine Choice”  We are thankful for the recognition!

© RI Alliance for Vaccine Choice and Vaccine Choice RI™, 2015. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to RI Alliance for Vaccine Choice and Vaccine Choice RI™ with appropriate and specific direction to the original content.

Your Weekly Dose of Information – April 8, 2016

Who We Are – Written by Linda McLaughlin

What does an average working man, a chiropractor, a photographer, real estate agent, a retired office worker, retired teacher and a person who works with non-profits have in common? We come from all backgrounds, all walks of life, with varying beliefs and have formed a unit. We have children some of us grandchildren, we have children not affected by vaccines and we have children vaccine injured.

We didn’t know each other before June of last year yet we have met, bonded, and became a team. We respect and communicate well with each other and despite all our differences communicate with one belief in common.

Since we founded our board in December we have managed to get five bills presented! (Two Senate Bills and Three House Bills) These bills will protect all of our freedoms and our rights to informed consent. They will require more transparency, communication, and accountability from the RIDOH. I am proud of all that we have accomplished. I am proud of everyone that has joined in this fight with us. I am especially proud to be a part of such a knowledgeable hardworking team. I cannot tell you what is going to happen from here. I don’t know if the bills are going to pass, or if it’s going to go any further but I can’t tell you enough how accomplished I feel that we have come this far.

Joan Lowder and I started this with the hope that we could have a voice against the mandate for the HPV vaccine. This team has given us more than just a little voice, they have given us hope and direction. They have given us a chance to fight against the power of the Department of Health. Joan and I want to publicly thank all those especially the board for all that they have done from the bottom of our hearts to wherever we go from here. Thank You!

From the grandmothers,
Linda and Joan

Legislative Update

This past Wednesday, April 6th the group presented testimony for House Bill H7899.  To view the testimony Click Here  All the bills presented that evening were held for further study. We will keep you updated on the progress of all the bills that have been introduced this session.

Call To Action

Contact your legislators

They still need to hear from us! Remember you elected them, hold them accountable. Explain that you want them to pass these bills. Our HPV Parent Information Kit has a lot of information and a sample letter you can email to your legislator.

Senate Bill S2292
Senate Bill S2295
House Bill H7475
House Bill H7476
House Bill H7899

Continue to spread the word with Parents

The school districts are sending home the vaccine requirements for the upcoming school year, for some parents this will be the first time hearing about the HPV vaccine mandate. Direct them to our website where they will find valuable information on our Resources Page Are you interested in booking us for a speaking engagement or event? Please contact us HERE

© RI Alliance for Vaccine Choice and Vaccine Choice RI™, 2015. Unauthorized use and/or duplication of this material without express and written permission from this site’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to RI Alliance for Vaccine Choice and Vaccine Choice RI™ with appropriate and specific direction to the original content.