Is Our Medical Information Private?

Since its inception, HIPPA has been touted as the Gold Standard in keeping our personal medical information safe and private. We assume everyone is following the rules.

Have you ever heard of KIDSNET?  What if I told you that if your child was born after 1997, their medical/immunization information is not private.  You would expect that information (EHR) to be safe in your doctor’s office computer protected by a fire wall.  And it is.  However, your child’s medical information is being shared with the Rhode Island Department of Health without your prior knowledge or consent.  DOH shares it with other State agencies.  Like DCYF, your school nurse-teacher, WIC, Family Visiting, Early Intervention and others.  And, your doctor or health provider is required transmit that data.

This legislation, we are told, will keep track of everyone’s  immunizations.  To prevent duplication and save money.  They use the excuse that Grandma might forget she had a flu shot.  Really?  

Once again this year RIDOH bills have been introduced in the legislature, S 0676 in the Senate and H 5541 in the House which propose to extend this practice of “capturing” your medical/immunization from your provider to adult Rhode Islanders.    According to this bill, you can only block the information from being shared with others (though they do not tell you exactly how to do so).  You would not be able to see what is transmitted to the Rhode Island Children and Adult Immunization Registry (RICAIR) without asking your doctor to print it out.  While they say you can request that your information be blocked or corrected if there are errors, again no details are provided.  The Rhode Island Department of Health will always have access to your information and you cannot block them.

Why should you be concerned if this bill is passed in its present form?  For one, parents are notified and soon to be adults will be notified after the transfer of information to RICAIR.  In addition to the above state agencies and others which may be added with the roll out of the adult registry, unknown others can view the information such as medical researchers and statisticians simply by filling out a form with the RI Dept of Health.  We have no idea who these individuals are or their purpose.

The addition of the adult vaccine information is concerning because of the way it could be used and abused.  In addition to your immunization status, your contact information address, email and phone number are listed in the data elements.  I don’t want to speculate or assume what would develop from this piece of legislation.  Suffice it to say that S676 or H5541 do not address the specific data points.   Here is a link to the endorsed patient demographic and vaccination event data elements from the cdc IIS data…/programs/iis/core-data-elements.  There is no information on the cyber-security of  RICAIR.

The Senate HHS Hearing on this bill is Thursday, May 9th at the Rise of the House usually between 4 and 5 p.m.

You can find the list of your Senators and Representatives in the RI Resources tab on this website.  Let your elected officials know what you think.



Forced Vaccination or Social Isolation? Is this our future?

In the past few months there have been outbreaks of measles cases in several states including Washington State, Oregon, New York and one case in Massachusetts.  Outbreaks of measles are not uncommon.  They occur every single year and they cycle up and down.  There have been no deaths due to measles decades.  So why the sudden insanity over measles?

I had measles as a child in 1961.  Due to good maternal care which included my mother’s famous chicken soup, watermelon and ice cream, I made a quick, full and complete recovery.  There was no panic or fanfare.  There were lots of puzzles and books, a really cool pair of red sunglasses and visits from my cousins who had already had measles.  And, there was no vaccine.

The Rockland County New York emergency declaration case, which was struck down in court Friday at 5:15 p.m. appears to expose the insanity of today’s approach to public health.  Instead of focusing on keeping those with active measles at home until the disease completed its course, the directive, by Rockland county administrator, sought to isolate healthy children who happen to have a religious exemption to vaccination.  They were barred from any public place in which 10 or more persons could gather. The parents of these children,  who might choose to defy the order, would be fined and possibly jailed.  At the time, there were only 4 active cases of measles.  I would say it makes sense to for anyone to remain at home with an active infection until they recover and  the actions of the Rockland County Health Director and Administrator could have taken this common sense approach to isolate the sick.  Instead they held vaccine clinics.

Most of the measles cases occurred in communities of Ultra Orthodox Jews.  Rockland County has many and so does New York City.   They have every right, just like all Americans to decide what is best for their families based on their beliefs.  April 9, 2019, the New York City Health Director and Mayor DiBlasio announced a public health emergency.  All persons who have not been vaccinated with MMR or who cannot show that they have immunity or a medical exemption, will be vaccinated or fined $1,000.00.  Bills are currently in the New York State, Connecticut, Washington State and Oregon Legislatures to remove the Religious exemption to vaccination.  So mandatory vaccination in these states is simply a few legislative votes away.  Unless like Governor Andrew Cuomo expressed, the constitutionality of such restrictions is considered.


Rhode Island’s religious exemption is still law for those who choose not to vaccinate.  In 2015, a bill was submitted in the Rhode Island Senate to remove it.  It did not make it out of committee.  Rhode Island has one of the highest vaccination rates in the nation, about 93%.  New York’s rate is in the 90% range.  According to the CDC, an official outbreak of measles needs only 3 cases.

Here are some points to ponder:  

Are less than 1,000 annual measles cases in a country of over 300 million people, a public health emergency?

Are we about to lose the right to informed consent and vaccine choice over measles fear?  It appears Mayor DiBlasio is willing to do just that.

Is what has transpired in the past few months really about public health or is it about political influence and pharmaceutical profits?

We will see what the verdict in New York City will be.

Rhode Island it is time to #BE BRAVE!!

This is the end of Autism Awareness Month and not a mention from the Rhode Island State House.  If you have seen Vaxxed the Movie, you may recall at the end of the film a call to action was mentioned to ask Congress to subpoena Dr. William Thompson the CDC whistle blower to testify before Congress about manipulation of data and corruption in the MMR study.  We have a resolution being heard to do just that.  A resolution is a shot across the bow, a warning that we are aware and we want action!  Just as we were the first to revolt in the Revolutionary War (remember the burning of the Gaspee)  Come out and support Senate Resolution 2670.

The RI Senate Committee on Health and Human Services will be holding a hearing Tuesday, May 1st and will consider bills we are supporting with regard to health freedom of choice, vaccines and human rights.

The bills authored by Senator Metts  (S2605 and Senate Resolution 2670) and Senator Goodwin (S2744) are the ones we are working hard promote and pass.

This will not happen without the efforts of everyone.  Make your best effort to appear and testify.  Email written testimony or call Chairman Miller. 401-276-5582 and Senate President Ruggerio 401 222-6655 and tell them you support these bills and want them brought to the floor for passage.







DATE: Tuesday, May 1, 2018
TIME: Rise of the Senate
PLACE: Senate Lounge – State House



Senate Bill No. 2225

BY Archambault, Sosnowski, Satchell, Sheehan
ENTITLED, AN ACT RELATING TO DEPARTMENT OF BEHAVIORAL HEALTHCARE, DEVELOPMENTAL DISABILITIES AND HOSPITALS — POWERS AND DUTIES — CHEMICAL DEPENDENCY PROFESSIONALS {LC3742/1} (Provides that the department of behavioral healthcare, developmental disabilities and hospitals with the power and duty to certify a list of chemical dependency professionals for use by state agencies and for referral of individuals for treatment.)
02/01/2018 Introduced, referred to Senate Health and Human Services
04/06/2018 Scheduled for hearing and/or consideration
04/10/2018 Committee recommended measure be held for further study
04/27/2018 Scheduled for consideration
Senate Bill No. 2538
BY DiPalma
ENTITLED, AN ACT RELATING TO HEALTH AND SAFETY – REGISTRATION OF NURSING ASSISTANTS {LC3200/1} (Allows for a nurse to delegate tasks to nursing assistants and authorizes the department of health to promulgate regulations that delineate delegable tasks.)
03/01/2018 Introduced, referred to Senate Health and Human Services
03/09/2018 Scheduled for hearing and/or consideration
03/12/2018 Meeting postponed
03/12/2018 Scheduled for hearing and/or consideration
03/27/2018 Committee recommended measure be held for further study
04/27/2018 Scheduled for consideration
Senate Bill No. 2551
BY Goodwin, Euer
ENTITLED, AN ACT RELATING TO STATE AFFAIRS AND GOVERNMENT — THE RHODE ISLAND AGING AND DISABILITY RESOURCE CENTER {LC4105/1} (Establishes aging/disability resource center within division of elderly affairs as part of long-term care system for elderly/disabled persons/family caregivers/providers.)
03/01/2018 Introduced, referred to Senate Health and Human Services
04/06/2018 Scheduled for hearing and/or consideration
04/12/2018 Committee recommended measure be held for further study
04/27/2018 Scheduled for consideration

Senate Bill No. 2226

BY Lynch Prata, McCaffrey, Miller, Metts, Nesselbush
ENTITLED, AN ACT RELATING TO HEALTH AND SAFETY – LICENSING OF HEALTH CARE FACILITIES – INFLUENZA IMMUNIZATION {LC4277/1} (Requires hospitals to offer immunization against influenza virus to all inpatients sixty-five (65) years of age or older from October to March of the following year.)
02/01/2018 Introduced, referred to Senate Health and Human Services
04/27/2018 Scheduled for hearing and/or consideration
Senate Bill No. 2530
(Dept. of Health)
BY Crowley, Quezada, Miller, Sosnowski
ENTITLED, AN ACT RELATING TO HEALTH AND SAFETY – DEPARTMENT OF HEALTH {LC4928/1} (Expands the current law so that RI adult residents would be included in the department of health immunization registry presently maintained for children. Also provides that any person may opt-out of the registry by contacting the department.)
03/01/2018 Introduced, referred to Senate Health and Human Services
04/27/2018 Scheduled for hearing and/or consideration
Senate Bill No. 2405
BY Metts, Morgan, Paolino, Cote, Archambault
ENTITLED, AN ACT RELATING TO HEALTH AND SAFETY – DEPARTMENT OF HEALTH {LC4723/1} (Allows parents or guardians of a child to opt out of vaccines for non-casual contact diseases transmitted by sexual contact.)
02/15/2018 Introduced, referred to Senate Health and Human Services
04/27/2018 Scheduled for hearing and/or consideration
Senate Resolution No. 2670
BY Metts, Morgan, Paolino, Crowley, Quezada
03/20/2018 Introduced, referred to Senate Health and Human Services
04/27/2018 Scheduled for hearing and/or consideration
Senate Bill No. 2744
BY Goodwin, Fogarty, Metts, Paolino, Crowley
ENTITLED, AN ACT RELATING TO EDUCATION – OFFENSES PERTAINING TO SCHOOLS {LC5161/1} (Provides an exception to required school immunizations for pupils whose personal, philosophical, or religious beliefs are contrary to immunization and/or testing.)
03/22/2018 Introduced, referred to Senate Health and Human Services
04/27/2018 Scheduled for hearing and/or consideration
Robin Dionne
Committee Clerk

SLegislation@rilegislature.govPOSTED: FRIDAY, APRIL 27, 2018, 4:04 PM


Time to Let your voice be heard.


Let your Voice Be Heard

Tell your story


Have you taken your child to a well baby check-up and were given little or no information on the vaccines to be given and told simply that they were required?  Now is the time to speak up for informed consent.


Have you asked questions about the vaccines to be given to yourself or your child and your doctor simply said they are “necessary, safe and effective” and was annoyed by your question? Now is the time to speak up for informed consent.


Have you refused one or more vaccines or wanted to use an alternative vaccine schedule and your doctor asked you to find another doctor?  Now is the time to let your voice be heard.


Were you told vaccines are mandatory, and your child could not attend daycare, preschool, etc. without them? Now is the time to stand up for the truth!


Did you submit a religious exemption form for the HPV Gardasil 9 vaccine?   Now is the time to stand up for your rights to be fully informed.


Was your child given a vaccine without your knowledge or consent or did your child sustain a vaccine injury?

Now is the time to tell your story!


Come to the Rhode Island House Committee Meeting on Health, Education and Welfare on Wednesday, March 21, 2018.


The hearing begins at about 4:30 (Rise of the House), but you are encouraged to arrive early if possible.  You can sign in to support the legislation below which will give individuals and families exemption rights and informed consent.


Here is the Legislation:


House Bill 7576 Allows for parents and others to opt out of vaccines for non-casual contact diseases transmitted by sexual contact between individuals and would require all correspondence to parents relating to vaccinations to contain notification about the option to opt out.


House Bill 7686  This Act would provide an exemption to required school immunizations for personal or philosophical beliefs.


House Bill 7704  This Act would require Informed Consent for vaccinations.

If you plan to attend the Hearing:


Arrive as early as possible, if you are going to arrive after 4:00 you can park in the DOT or DOH lots across the street.  If you have written testimony, please keep it to approximately 2 pages. You must submit individually for each bill. Make sure your name, contact information and correct bill number are at the top of each page.  Make 23 copies to submit to the Committee clerk.


If you are going to testify, make sure your remarks are not verbatim of your written testimony.  You only have about 2 minutes so make your case, your most important point and back it up in your written submission.  If you have any questions on this email me at


If you are unable to attend, the hearing email your testimony to:  Keep your written testimony to approximately 2 pages.  You must submit a separate letter/statement for each bill.  Make sure your name, contact information and correct bill number are at the top of each page.  

If your representative is a member of the House HEW comittee, please contact them and ask them to support these bills.

Contact info:

Honoring Colton Berrett

Colton Berrett was injured by the Gardasil Vaccine.  It left him paralyzed and unable to breathe unassisted or hold his head up on his own.  Despite this devastating injury, Colton had a wonderful, positive outlook. He worked hard to learn to walk again.  He was interviewed by the Vaxxed Team in his native Utah in 2016. Watch here: Colton Barrett 2016

Colton’s wish was to see a day when no child, teen, or young adult is injured by any HPV vaccine. Sadly, Colton left this world unexpectedly on Friday, January 5, 2018 at the age of 18. He joins a growing list of Gardasil Angels. His loving and supportive family are devastated by his passing.  Please “Pray Big” that they may find comfort in God’s grace.

In Rhode Island, we can all honor Colton and his wish by continuing to inform and educate our friends, family, elected officials and especially medical professionals about the risks involved in vaccination, particularly the Gardasil vaccine.  This ineffective and unsafe vaccine must be removed from the recommended CDC schedule and the Rhode Island school attendance requirements.   

Looking forward to 2018.

Happy Holidays!

I know you are all busy with Holiday preparations.  It is that time of year when we enjoy time with family and friends.  While you spend time sharing food, drink and holiday cheer with others, take the opportunity to share this information about vaccine safety.

In this video taped early this year, vaccine safety advocate, producer and medical journalist, Del Bigtree, presents a Vaccine Safety Project power point developed by the World Mercury Project.  This information will inform and empower.  Less than an hour of your time.

Del Bigtree-vaccine safety

In the new year,  let’s all continue the work to inform and protect the rights of all to vaccine choice and health freedom.

Wishing you good health and good cheer in the New Year,

Deb O’Leary



Eighth Annual Vaccine Awareness Week

  • November 5-11th, is Vaccine Awareness Week.  The National Vaccine Information Center in association with will be hosting a series of online videos on Vaccine safety and Informed Consent.  Go to for more information.
  • #RIAVC has received several inquiries regarding vaccine choice friendly pediatricians in Rhode Island. It appears they are difficult to find.  If your doctor is “friendly” and taking new patients, please contact us.
  • Don’t forget to set your clocks back 1 hour tonight!




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